Family and disability: aesthetic relations as mediations
Main Article Content
Abstract
This study aimed to analyze the meanings attributed by parents of people with intellectual disabilities in relation to their aesthetic experiences in a social inclusion program. The field of study is the “Arts for All Program”, which aims to promote the social inclusion of people with disabilities from different artistic modalities. The program counts on the involvement of six parents of people with intellectual disabilities in this process. The data construction process took place through semi-structured interviews, carried out in a virtualized way and taking place through the social network WhatsApp. Data systematization was developed from content analysis, based on (MORAES, 1999; BARDIN, 2016). The theoretical framework was supported by cultural-historical psychology, with Vygotsky (1997; 2001) and Sawaia (2001) as the main authors. The results of this research show that parents of people with intellectual disabilities notice the importance of spaces that promote the development of their children, for example the program under study. The research subjects emphasize that the possibility of participating in art classes with their children allowed the construction of new perspectives towards themselves and their children. It can be seen in the parents' statements that participation in classes produced important effects in looking at their children and the bonds between them. This study also discusses how the impasses experienced by families of people with disabilities are permeated by political and social factors, which indicate the need for Psychology to produce more critical readings about the relationship between family and disability.
Downloads
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
References
BARROCO, S. M. S. The fetishized family in the educational ideology of a capitalist society in crisis: an issue for educational psychology. In: DUARTE, N. (org.). Critique of the Fetishism of Individuality. São Paulo: Autores associados, 2012. Chapter 7, pp. 151-173.
BARROCO, S. M. S. Vygotsky and the study of the psychology of art: contributions to human development. Psicologia & Sociedade [online]. 2014, v. 26, n. 1, pp. 22-31. Available at: https://doi.org/10.1590/S0102-71822014000100004.
BARROCO, S. M. S. Context and Texts of Vygotsky on Defectology. In: BARROCO, S. M. S. et al. Special Education and Historical-Cultural Theory: In Defense of the Humanization of Man. Maringá: Editora da Universidade Estadual de Maringá, 2012.
BARDIN, L. Practices. In: BARDIN, L. Content Analysis, 2016. pp. 53-107. Available at: https://madmunifacs.files.wordpress.com/2016/08/anc3a1lise-de-contec3bado-laurence-bardin.pdf. Access 20 july 2022.
BRAZIL, LAW No. 13,146. July 6, 2015. Establishes the Brazilian Law on the Inclusion of Persons with Disabilities (Disability Statute). Planalto. Available at: http://www.planalto.gov.br/ccivil_03/_ato2015-2018/2015/lei/l13146.htm. Access 20 july 2022.
CAMARGO, D. de; BULGACOV, Y. L. M. The aesthetic and expressive perspective in schools: articulating concepts from socio-historical psychology. Psicol. estud., Maringá, v. 13, n. 3, pp. 467-475, Sept. 2008. Available at: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1413-73722008000300007&lng=en&nrm=iso. Access 20 july 2022.
DIAS, S. S.; OLIVEIRA, M. C. S. L. Intellectual disability from a historical-cultural perspective: contributions to the study of adult development. Rev. bras. educ. espec., Marília, v. 19, n. 2, pp. 169-182, June 2013. Available at: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1413-65382013000200003&lng=en&nrm=iso.
FEDERICI, S. The Wage-Patriarchy. Translated by Heci Regina Candiani. São Paulo: Boitempo, 2021.
FURLAN, F. Teaching art, learning, and development: senses and meanings attributed by non-formal education teachers to teaching work carried out with individuals with intellectual disabilities. 2020. 122 p. Master's Thesis - University of the Joinville Region, Joinville, 2020.
GUIMARÃES, C. C. A. The Right to Have a Father: Parental Abandonment and the Role of the Public Defender's Office of the State of Minas Gerais. 2021. 24 p. Undergraduate Thesis (Law) - Federal University of Uberlândia – Uberlândia, 2021.
GUARIDO, R. Notes on Medicalization. In: KAMERS, Michele; MARIOTTO, R. M.; VOLTOLINI, R. Towards a New Psychopathology of Childhood and Adolescence. São Paulo: Escuta, 2015. Chapter 04, pp. 303-313.
KLAZURA, M. A.; FOGAÇA, V. H. B. Individuals with disabilities between the biomedical model and the biopsychosocial model: competing conceptions. Emancipação, v. 21, pp. 1–18, 2021.
MACALINI, E. R. The Teaching of Arts in NGOs: Historical Factors That Implemented Partnerships Between the Public and Private Sectors. Education, Arts, and Inclusion Magazine, Florianópolis, SC, v. 06, n. 02, 2012. [n.p].
MANZINI, E. J. Consideration of interview transition. In: MARQUEZINE, M. C. et al. (eds.) Colloquium on Special Education Research. Londrina: eduel, 2003. pp. 11-25.
MATA, A. S. Intellectual Disability: Analysis of Scientific Production Based on the Biomedical and Social Models of Disability. Philosophy and Education, Campinas, SP, v. 10, n. 2, pp. 350–378, 2018. Available at: https://periodicos.sbu.unicamp.br/ojs/index.php/rfe/article/view/8653186. Access 27 july 2022.
MATA, N. T. Neglect in Childhood: A Reflection on the (Lack of) Protection of Children and Families. The Social in Question, pp. 223 - 238, 2019. Available at: http://osocialemquestao.ser.puc-rio.br/media/OSQ_45_art_10.pdf. Access 27 july 2022.
MORAES, R. Content Analysis. Education Journal, Porto Alegre, v. 22, n. 37, pp. 7-32, 1999.
OLIVEIRA, M. R.; SCHLOSSER, A. Brazilians Are Like That: Fatalism Associated with the Identity of Being Brazilian. Psicol. Am. Lat., Mexico, n. 33, pp. 23-32, Jul. 2020.
PAUGAM, S. Social Disqualification: An Essay on the New Poverty (C. Giorgetti, T. Lourenço, Trans.). São Paulo: Educ & Cortez. 2003.
RAGAZZON, P. A. Beyond Our Differences: Theater, Poetics, and Intellectual Disability. 2018. 86 p. Dissertation (Master's in Theater Arts) – Federal University of Rio Grande do Sul – Porto Alegre, 2018.
SAWAIA, B. Ethical-Political Suffering as an Analytical Category for the Dialectics of Exclusion/Inclusion. In: SAWAIA, B. (org.). The Tricks of Exclusion: Psychosocial Analysis and Ethics of Social Inequality.
SAWAIA, B. Family and Affection: the configuration of an ethical-political praxis, dangers, and opportunities. In: ACOSTA, A. R.; VITALE, M. A. F. (eds.). Family: Networks, Bonds, and Public Policies. 2018. Chapter 2, pp. 39-53. Petrópolis: Cortez, 2018.
TOMAZ, R. V. V. et al. Public Health Policies for Individuals with Intellectual Disabilities in Brazil: An Integrative Review. Ciência & Saúde Coletiva [online]. 2016, v. 21, n. 1. pp. 155-172. Available at: https://doi.org/10.1590/1413-81232015211.19402014.
TRIVIÑOS, A. N. S. Introduction to Research in Social Sciences: Qualitative Research in Education. São Paulo: Atlas, 2007.
VYGOTSKY, L. S. Fundamentals of Defectology. Selected Works V. Madrid: Visor, 1997.
VYGOTSKY, L. S. Psychology of Art. São Paulo: Martins Fontes. 1999.